Congenital heart disease (CHD) is the most common birth defect in the United States, affecting about 1 in 100 babies. However, hospital data on short- and long-term outcomes for patients were limited and often difficult to access and / or interpret.

“Colorado Children’s Hospital has long been committed to ensuring transparency about our results,” said Dr. Dunbar Ivy, chief pediatric cardiologist at the Heart Institute at Colorado Children’s Hospital, ranked sixth on US News & World Report. “We believe that open, honest reporting and dialogue are key to improving outcomes for all patients.”

Following the 2020 Summit on Transparency and Public Coverage of Pediatric and Congenital Heart Disease, the Colorado Children’s Hospital Heart Institute and other children’s hospitals have partnered with Conquering CHD (formerly known as the Pediatric Congenital Heart Association) to develop a public, online tool that delivers outcome data Used by hospitals and centers across the country to help patients and their families make informed decisions about where to perform heart surgery or other procedures. This tool, called the Hospital Navigator, provides access to important, reliable and understandable data.

“Of the 42,000 babies diagnosed with CHD each year in the US, more than 13,000 require life-saving intervention in the first few weeks or months of life,” said David Kasnic, executive director of Conquering CHD. “My daughter was one of those 13,000, and since she was born my goal has been to improve education, awareness, research, and advocacy for all people with CHD. The Hospital Navigator helps patients and their families choose the information they need.” The right center for the care of your child. “

Currently, 15 hospitals with CHD programs have passed their results data on to Conquering CHD. The Hospital Navigator is not used to classify surgical centers or hospitals, but rather provides data to support an informed conversation between families and care teams.

“When Oliver was diagnosed with hypoplastic left heart syndrome, the Hospital Navigator did not yet exist. We were disturbed and deeply saddened by how many doctors saw prognoses for the future,” said Becca Kalivas, mother of 3-year-old Oliver. “We did a lot of research ourselves and fortunately found the Colorado Children’s Hospital. For families who are now looking for the right care, the Hospital Navigator will certainly make the search a lot easier. We are very grateful to our team at the Colorado Children’s Hospital for the continuation of their commitment to Transparency by participating in such an important resource. “

By raising awareness of the Hospital Navigator, Colorado Children’s Hospital and Conquering CHD want to encourage more hospitals to be transparent about their outcomes, including operation volume, overall survival rates and survival rates after surgical complexity, and length of hospital stay after surgery. With this information, more families can make informed decisions when choosing a hospital to care for their child.

Guidelines for Medical Marijuana Use in Children’s Hospital

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